• Power Point Presentation "Transition for YSHCN: how do we get this done?" R. Antonelli for May 7, 2008 HRTW Topical Call.

Evaluation

• Evaluation [DOC]

Illinois Title V CYSHCN Websites

• For an overview of the Illinois Title V CYSHCN program, of which Dr. Charles Onufer is director, go to the website for the University of Illinois at Chicago Division of Specialized Care for Children (DSCC): http://www.uic.edu/hsc/dscc
  
  DSCC has an extensive array of resources on the medical home for health care providers and families. The gateway to this information is: http://internet.dscc.uic.edu/medhome/mhintro.asp

Tools

• "Transitions – Changing Role for Youth" checklists for youth and their families to assess attitudes, behaviors, and health care practices that support successful transition
  
  
• "Checklist for Transition: Core Knowledge and Skills for Pediatric Practices"

Data

• The National Survey of Children with Special Health Care Needs includes an array of data regarding national and state progress in meeting the goal that every CYSHCN has a medical home that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate, and culturally effective care. To access survey findings go to: www.cshcndata.org
  
  Summary prepared by the HRTW National Resource Center of data from the NS-CSHCN on the medical home’s progress in preparing youth for transition to adult health care.
  

Publications

• American Academy of Family Physicians (AAFP), American Academy of Pediatrics (AAP), American College of Physicians (ACP), American Osteopathic Association (AOA). Joint Principles of the Patient-Centered Medical Home http://www.pcpcc.net/node/14
  
  
• American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110: 1301-1335 Supplement
  http://aappolicy.aappublications.org/cgi/content/full/pediatrics;110/6/S1/1304
  
  
• American College of Physicians. The Advanced Medical Home: A Patient-Centered, Physician-Guided Model of Health Care: A Policy Monograph 2006 http://www.acponline.org/advocacy/where_we_stand/medical_home/
  
  
• Betz CL. Transition of adolescents with special health care needs: review and analysis of the literature. Issues in Comprehensive Pediatric Nursing. 2004; 27:179-241.
  
  
• Binks JA, Barden WS, Burke TA, Young NL. What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabil. 2007; 88:1064-73.
  
  
• Burke R, Spoerri M, Price A, Cardosi A, Flanagan P. Survey of primary care pediatricians on the transition and transfer of adolescents to adult health care. Clinical Pediatrics. 2008;20(10) e-Pub.
• McDonagh JE. Transition of care from pediatric to adult rheumatology. Arch Dis Child. 2007;92:802-7.
  
  
• Reiss JG, Gibson RW, Walker LR. Health care transition: youth, family and provider perspectives. Pediatrics. 2005; 115:112-120.
  
  
• Rosen DS. Between two worlds: bridging the cultures of child health and adult medicine. Journal of Adolescent Health. 1995;17:10-16.
  
  
• Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM. Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine. J Adolesc Health. 2003; 33: 309-11.
  

Medical Home and Champions Resources

• Medical Home Training modules – includes comprehensive coordinated care and transition; curriculum developed with Title V participation: http://www.medicalhomeinfo.org/training/index.html
  
  
• Medical Home Learning Collaboratives and Chronic Care Model: http://www.medicalhomeinfo.org/model/learning.html
  
  
• Ideas for states to promote medical homes (which promote transition): http://www.medicalhomeinfo.org/tools/state.html
  
  
• Resources within the states for collaborative medical home and transition activities: http://www.medicalhomeinfo.org/states/index.html
  
  
• Champions, Inc National Center State Incentive Grants on Transition: http://www.championsinc.org/transition/state_efforts.cfm
  
  
• Champions, Inc website with community organization resources: http://www.championsinc.org/
  
  
• Champion Issue Brief on Transition to Adulthood http://www.championsinc.org/resources/issuebriefs/issuebrief08.pdf

Other

• "9 Easy Steps- questions for health care providers to foster a successful transition to adulthood." A one-page guide created by Patience H. White, MD, FAAP
  
  
• Just published, April 28, 2008 – Riley Hospital transition clinic – partially funded by Indiana Dept of Health and Division of Aging and Rehab Services – example of how a state agency can promote transition services! http://www.news-medical.net/?id=37848
  
  
• Making the case for state investment in adolescent health to promote transition by AMCHP/ASTHO http://www.astho.org/pubs/MakingtheCase.pdf
  
  
• Power Point Presentation, "Preparing for the Difference". Presented by HRTW Team Members Antonelli, Shapland, & Cyr @ the 7th Annual Forum for Improving Children’s Healthcare, March 2008